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Free Resources about the rare conditions my daughter has.
When Asking a Doctor Is Just Not Enough
The healthcare system is sometimes hard to juggle but this site will hopefully help you advocate for your child and provide resources about the rare conditions my daughter has.
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All of the websites I listed are non-profit organizations. They take donations if you wish but no obligations.
Websites
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rarediseases.org
Organizations
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Coping with Laryngomalacia, Inc
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GARD or National Organizations of Rare Diseases
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G-Pact
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